Public engagement and outreach

2015

BC company to launch DNA testing service, Scrutiny by government and College of Physicians and Surgeons being considered. PACEOMICS Caulfield quoted by Vancouver Sun. 19 August 2015. http://www.vancouversun.com/health/company+launch+testing+service/11302770/story.html

Opinion: Let the genomic revolution prevail. PACEOMICS McCabe quoted by Edmonton Journal. 29 July 2015. http://www.edmontonjournal.com/Opinion+genomic+revolution+prevail/11249101/story.html

Genetics and Personalized Medicine: Where’s the Revolution? PACEOMICS Caulfield writing for BMJ Clinical Evidence Blog. 23 July 2015. http://blogs.bmj.com/bmj/2015/07/23/timothy-caulfield-genetics-and-personalized-medicine-wheres-the-revolution/

I Tried It: Eating for My DNA Type: For $449, a company will test your DNA and send you a diet and fitness plan tailored to your genetic makeup. Is it worth it? PACEOMICS Caulfield quoted by FLARE Magazine. 14 June 2015. http://www.flare.com/health/i-tried-it-eating-the-dna-diet/

Is Gwyneth Paltrow wrong about everything? PACEOMICS Caulfield quoted by The Telegraph. 9 May 2015. http://www.telegraph.co.uk/news/celebritynews/11591936/Is-Gwyneth-Paltrow-wrong-about-everything.html

Scientific community concern over genetic manipulation. PACEOMICS Caulfield quoted by Radio Canada International, Health Law Institute, U of A. 23 April 2015. http://www.rcinet.ca/en/2015/04/23/scientific-community-concern-over-genetic-manipulation/ 

Trolls and patents on research tools. PACEOMICS Ali-Khan and PACEOMICS Bubela writing for PACEOMICS. April 2015. http://paceomics.org/wp-content/uploads/2014/10/Policy-Brief-6-April-2015-Trolls-and-research-tool-patents_SEA.pdf

The Angelina Jolie effect is back, and that’s a good thing. PACEOMICS Caulfield quoted in Maclean’s Magazine. Mar 2015. http://www.macleans.ca/society/health/the-angelina-jolie-effect-is-back-and-thats-a-good-thing/

Blowback to the ‘Angelina effect’ as experts warn Jolie’s decision leads to greater anxiety and unnecessary tests. PACEOMICS Caulfield quoted in the National Post. Mar 2015. http://news.nationalpost.com/news/blowback-to-the-angelina-effect-as-experts-warn-jolies-decision-leads-to-greater-anxiety-and-unnecessary-tests#__federated=1

Jolie can start a health conversation, but she mustn’t be the last word. Opinion piece by PACEOMICS Caulfield in the Globe and Mail. Mar 2015. http://www.theglobeandmail.com/globe-debate/jolie-can-start-the-health-conversation-but-she-mustnt-be-the-last-word/article23601598/

Ethical Implications of Theory-driven Versus Empirically-driven Research Programs. Forum by PACEOMICS Hay at Université de Montréal. Mar 2015.

Patenting of Genetic Materials: Biotechnology and Intellectual Property Rights. Presentation and discussion led by PACEOMICS Gold and Dr. Julie Richer (CHEO) hosted by the McGill Journal of Law and Health. Montreal, QC. Mar 2015.

Translational Research for Reimbursement: The Value Engineered Translation Framework. Presentation by PACEOMICS Bubela and PACEOMICS McCabe at BioCanRx Board Meeting. Jan 2015.

2014

Obesity Policy: Moving Forward. PACEOMICS Caulfield testifying before the Canadian Senate Committee of Social Affairs, Science and Technology. Ottawa, ON. Oct 2014. http://www.parl.gc.ca/content/sen/committee/412/SOCI/22EV-51692-E.HTM

Taking health discoveries from cutting edge to clinic. PACEOMICS Bubela interviewed in University of Alberta Latest News. Dec 2014. http://uofa.ualberta.ca/news-and-events/newsarticles/2014/december/taking-health-discoveries-from-cutting-edge-to-clinic

Why we should resist the lure of home genetic tests. PACEOMICS Caulfield‘s research highlighted in the Globe and Mail. Nov 2014. http://www.theglobeandmail.com/life/health-and-fitness/health/resist-the-lure-of-home-genetic-tests/article21596955/

Examining Gene patenting in Canada. PACEOMICS Gold speaks on his role leading an expert team to educate the court on policy implications of gene patents in Canada. Media release event for announcement of litigation by Children’s Hospital of Ontario (CHEO) (Long QT Syndrome gene patenting test case). Ottawa, ON. Nov 3 2014.

PACEOMICS Gold on CTV News: Ontario hospital launches lawsuit against owners of gene patent. (Three broadcast stories at this link, including Gold interview. They can be viewed on right, clicking the “2”) Nov 3 2014. http://www.ctvnews.ca/health/ontario-hospital-launches-lawsuit-against-owners-of-gene-patent-1.2084144

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on CTV News (Three broadcast stories at this link, including interview with CHEO CEO, and three additional videos with Graham (CHEO), Gold and Lipkus (Gilberts LLP). They can be viewed on right, clicking the “2”)
. Nov 3 2014. http://www.ctvnews.ca/health/ontario-hospital-launches-lawsuit-against-owners-of-gene-patent-1.2084144

How a gene patent test case will help both patients and inventors. Opinion piece by PACEOMICS Gold in the Globe and Mail. Nov 4 2014. http://www.theglobeandmail.com/globe-debate/how-a-gene-patent-test-case-will-help-both-patients-and-inventors/article21437174/

Gene Patents and patients. PACEOMICS Gold on The Agenda with Steve Paikin TVO. Nov 7 2014. http://tvo.org/video/208330/richard-gold-gene-patents-and-patients

PACEOMICS Gold interviewed on Radio-Canada on CHEO test case. Nov 8 2014. http://ici.radio-canada.ca/emissions/les_samedis_du_monde/2014-2015/chronique.asp?idChronique=354616

PACEOMICS Gold interviewed on Radio-Canada on CHEO test case. “Les Annés lumières”. Nov 14 2014. http://ici.radio-canada.ca/nouvelles/science/2014/11/14/002-brevetage-genes-hopital-ottawa.shtml

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on CBC The National. Nov 3 2014. https://www.youtube.com/watch?v=pTTXaPaE0HA&list=UUKjU3KzdbJE1EFcHVqXC3_g

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in The Canadian Press: Canadian hospital launching court challenge invalidate patents on human genes. Nov 3 2014. http://www.thecanadianpress.com

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in The Globe & Mail: ‘Bad patents’ on human genes hinder health care, hospital tells court. Nov 3 2014. http://www.theglobeandmail.com/life/health-and-fitness/health/bad-patents-on-human-genes-hinder-health-care-hospital-urges-court/article21423222/ – dashboard/follows/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in the Huffington Post (Canada): Canadian hospital launching court challenge to invalidate patents on human genes. Nov 3 2014. http://www.huffingtonpost.ca/2014/11/03/canadian-hospital-launchi_n_6093980.html

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on CBC News: U.S. gene patents: Patient care stymied in Canada, hospital claims: ‘Genes are not inventions,’ medical geneticist says. Nov 3 2014. http://www.cbc.ca/news/health/u-s-gene-patents-patient-care-stymied-in-canada-hospital-claims-1.2820211

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on CBC Power & Politics. Nov 3 2014. http://www.cbc.ca/player/News/Health/ID/2585643006/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in the Star (Toronto, ON). Nov 3 2014. http://www.thestar.com/news/world/2014/11/03/gene_patent_lawsuit_aims_to_clear_up_confusion_in_canada.html

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CEO) Long QT Syndrome gene patenting test case in the Star (Toronto, ON). Nov 3 2014. http://www.thestar.com/news/canada/2014/11/03/5_things_to_know_about_the_canadian_gene_patent_case.html

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CEO) Long QT Syndrome gene patenting test case on Global News. Nov 3 2014. 
http://globalnews.ca/news/1650367/canadian-hospital-challenging-human-dna-patents/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on the Sun News Network – Children’s Hospital of Eastern Ontario launches groundbreaking legal challenge of American gene patents. Nov 3 2014.http://www.sunnewsnetwork.ca/sunnews/sciencetech/archives/2014/11/20141103-110114.html

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in La Presse (Montreal, QC). Nov 3 2014. http://www.lapresse.ca/le-droit/actualites/sante/201411/03/01-4815378-le-cheo-en-croisade-contre-les-brevets-en-genetique.php?utm_categorieinterne=trafficdrivers&utm_contenuinterne=cyberpresse_B9_ailleurs-dans-la-region_98069_section_POS1

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on Radio Canada International (RCI). Nov 3 2014.http://www.rcinet.ca/en/2014/11/03/canadian-research-hospital-challenges-human-dna-patenting/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case Opinion column in The Sun (Toronto, ON). Nov 19 2014. http://www.torontosun.com/2014/11/19/feds-must-fight-genetic-testing-patents

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case Opinion in The Star (Toronto, ON). Nov 4 2014. http://www.thestar.com/opinion/editorials/2014/11/04/canada_should_ban_patenting_of_human_genes_editorial.html

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case Opinion piece in Ottawa Citizen by Genome Canada CEO and President Pierre Meulien: Genomes: What should and shouldn’t be patented; There is a fine but important line. http://www.pressreader.com/bookmark/XN9O45434N43/TextView

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in the Digital Journal: Children’s Hospital in Canada’s Capital Launches Legal Challenge of Gene Patent In Order To Protect Patient Care
. Nov 3 2014. http://www.digitaljournal.com/pr/2303659

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case Opinion on PR Newswire. Nov 3 2014. 
http://www.prnewswire.com/news-releases/childrens-hospital-in-canadas-capital-launches-legal-challenge-of-gene-patent-in-order-to-protect-patient-care-281307041.html

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in Virtual Press Office: Children’s Hospital in Canada’s Capital Launches Legal Challenge of Gene Patent In Order To Protect Patient Care
. Nov 3 2014. http://www.virtualpressoffice.com/publicsiteContentFileAccess?fileContentId=1795810&fromOtherPageToDisableHistory=Y&menuName=News&sId=&sInfo=

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on YAHOO Canada. Nov 3 2014.https://ca.news.yahoo.com/canadian-hospital-launching-court-challenge-invalidate-patents-human-151531849.html

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on GenomeWeb (NY). Nov 3 2014. http://www.genomeweb.com/clinical-genomics/update-canadian-pediatric-hospital-challenges-gene-patenting-long-qt-syndrome

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on Ars Technica. Nov 4 2014. http://arstechnica.com/tech-policy/2014/11/canadian-hospital-sick-of-us-test-monopoly-sues-to-stop-gene-patents/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case Opinion in Bereskinparr blog. Nov 4 2014. http://www.bereskinparr.com/Doc/id474

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on GenomeWeb. Nov 5 2014. https://www.genomeweb.com/clinical-genomics/drawing-lessons-us-gene-patent-cases-canadian-hospital-focuses-enabling-ngs-test

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case Opinion on ACLU blog. Nov 6 2014. https://www.aclu.org/blog/womens-rights/fight-take-back-our-genes-moves-canada

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on Personalized Medicine Bulletin. Nov 23 2014. http://www.personalizedmedicinebulletin.com/2014/11/23/canada-joins-the-gene-patenting-debate/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in Ottawa Citizen (with video). Nov 3 2014. http://ottawacitizen.com/news/national/cheo-challenges-patent-on-human-genes

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on Metro News: Ottawa children’s hospital challenging human DNA patents. Nov 3 2014.http://metronews.ca/news/canada/1201588/hospital-challenging-human-dna-patents/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on CTV News Ottawa: CHEO launches lawsuit against owners of gene patent. Two different stories at this link. Nov 3 2014.http://ottawa.ctvnews.ca/cheo-launches-lawsuit-against-owners-of-gene-patent-1.2084430

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on CFRA (Ottawa, ON).Nov 3 2014.http://www.cfra.com/news/2014/11/03/cheo-launching-legal-challenge-of-gene-patent

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in Le Droit (Ottawa, ON). Nov 3 2014.http://www.lapresse.ca/le-droit/actualites/sante/201411/03/01-4815378-le-cheo-en-croisade-contre-les-brevets-en-genetique.php?utm_categorieinterne=trafficdrivers&utm_contenuinterne=cyberpresse_B9_ailleurs-dans-la-region_98069_section_POS1

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in Sun News Ottawa, ON. Nov 3 2014.http://www.ottawasun.com/2014/11/03/cheo-launches-legal-fight-over-patented-genes

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on TVA (QC). Nov 3 2014.
http://www.tvagatineau.ca/articles/20141103133019/recherche_sur_les_maladies_genetiques_cheo_depose_recours_justice.html

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on Radio-Canada (Ottawa/Gatineau, ON)« Breveter un gène est comme breveter l’eau », selon un responsable d’un hôpital d’Ottawa
. Nov 3 2014. http://ici.radio-canada.ca/regions/ottawa/2014/11/03/008-brevet-gene-cheo-poursuite-cour-federale.shtml

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case Radio-Canada. Les Voix du Retour (Gatineau, ON) – interview with Julie Richer (CHEO). Nov 3 2014.http://ici.radio-canada.ca/emissions/les_voies_du_retour/2014-2015/index.asp

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on CBC Radio « All in a Day ». Nov 3 2014. http://www.cbc.ca/allinaday/2014/11/03/why-cheo-is-launching-a-lawsuit-about-gene-patents/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on CBC News Ottawa, ON. Coverage on the 5:30 News with Lucy Van and Oldenbarneveld and Adrian Harewood.

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case Opinion on Winnipeg Free Press (MB) Nov 3 2014.http://www.winnipegfreepress.com/arts-and-life/life/health/canadian-hospital-launching-court-challenge-invalidate-patents-on-human-genes-281307361.html

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on 680 News (Talk Radio Toronto, ON). Nov 3 2014. http://www.680news.com/2014/11/03/canadian-hospital-launching-court-challenge-invalidate-patents-on-human-genes/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on City News (Toronto, ON). Nov 3 2014. http://www.citynews.ca/2014/11/03/canadian-hospital-launching-court-challenge-invalidate-patents-on-human-genes/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in Kelowna Daily Courier (BC): Canadian hospital launching court challenge invalidate patents on human genes. Nov 3 2014. http://www.kelownadailycourier.ca/life/national_life/article_8d80357e-da3c-5b4b-b61c-3eab996ef439.html

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in Lethbridge Herald (ON). Nov 3 2014.http://lethbridgeherald.com/news/national-news/2014/11/03/canadian-hospital-launching-court-challenge-invalidate-patents-on-human-genes/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in Timmins Times (ON). Nov 3 2014.http://www.timminstimes.com/2014/11/03/cheo-launches-legal-fight-over-patented-genes

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in The Record (Waterloo, ON). Nov 3 2014.http://www.therecord.com/whatson-story/4958284-canadian-hospital-launching-court-challenge-to-invalidate-patents-on-human-genes/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in The Chronicle Herald (Halifax, NS). Nov 3 2014. http://thechronicleherald.ca/canada/1248341-ontario-hospital-challenges-right-to-patent-human-genes

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in Hamilton Spectator (ON). Nov 3 2014.http://www.thespec.com/news-story/4958684-canadian-hospital-launching-court-challenge-to-invalidate-patents-on-human-genes/

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case on CBC News Blog: Elsewhere in the capital, the Children’s Hospital of Eastern Ontario holds an embargoed technical briefing in advance of an announcement that, according to the advisory, “could impact the future of healthcare in Canada”. Nov 3 2014.http://www.cbc.ca/newsblogs/politics/inside-politics-blog/2014/11/french-president-francois-hollande-addresses-house-during-state-visit.html

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in Lobby Monitor (Ottawa, ON). Morning Briefing: At 10:15 a.m. at CHEO in Ottawa and following a technical briefing for media, the Children’s Hospital of Eastern Ontario will “hold a press conference to make an announcement that could impact the future of healthcare in Canada,” according to an advisory.

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in Lab Manager Magazine (Canada). Nov 3 2014.http://www.labmanager.com/news/2014/11/canadian-children-s-hospital-launches-legal-challenge-of-gene-patent?fw1pk=2#.VFes5xZOn3U

PACEOMICS Gold coverage of the Children’s Hospital of Ontario (CHEO) Long QT Syndrome gene patenting test case in Community Press (ON). Nov 3 2014. http://www.communitypress.ca/2014/11/03/cheo-launches-legal-fight-over-patented-genes

CHEO public interest action: resolving gene patenting policy for the benefit of all Canadians. PACEOMICS Ali-Khan and PACEOMICS Gold writing for PACEOMICS. Nov 2014. http://paceomics.org/wp-content/uploads/2014/10/Policy-Brief-4-CHEO-public-interest-lawsuit.pdf

Steering Novel-Biotherapeutics from Bench to Bedside: All you ever wanted to know about intellectual property and commercialization. PACEOMICS Bubela lectures at Case-based Workshop. Faculty of Medicine and Dentistry, University of Alberta. Nov 2014.

Steering Novel-Biotherapeutics from Bench to Bedside: Ocular Gene Therapy. Training Case Study by PACEOMICS Bubela, Nutter L, Khashayar Varkouhi A, Bonter K, and Benjaminy S. Faculty of Medicine and Dentistry, University of Alberta. Nov 2014.

Steering Novel-Biotherapeutics from Bench to Bedside: Ocular Gene Therapy. Discussion Leader’s Guide. PACEOMICS Bubela and Bonter K, lecture at Case-based Workshop. Faculty of Medicine and Dentistry, University of Alberta. Nov 2014.

Direct to consumer genetic testing in Canada: should we be concerned? Opinion piece by PACEOMICS CaulfieldPolicy Options, Oct 2014. http://healthydebate.ca/opinions/direct-consumer-genetic-testing

News piece by PACEOMICS CaulfieldControversial genetic self-testing kits coming to Canada. The Globe and Mail. Oct 2 2014. http://www.theglobeandmail.com/life/health-and-fitness/health/genetic-self-testing-kits-to-come-to-canada/article20885678/

PACEOMICS Caulfield weighs in on genome mapping on breakfast television in Edmonton. Oct 9 2014. http://www.btedmonton.ca/videos/3829935797001/#__federated=1

Obesity Policy: Moving Forward. PACEOMICS Caulfield testifies before the Canadian Senate Committee of Social Affairs, Science and Technology. Ottawa. Oct 2014. Brief available at: http://www.hli.ualberta.ca/~/media/hli/Publications/Docs/2014-11_Obesity_Policy_Senate_Submission_Version.pdf

PACEOMICS Gold interviewed by World Trade Online regarding Comprehensive Economic and Trade Agreement (CETA) and its IP provisions. World Trade Online. Aug 2014.

Factums submitted to Supreme Court of Canada in Apotex v. Sanofi-Syntholab, by PACEOMICS Gold. Aug – Sept 2014.

PACEOMICS Bubela cited: in Nature Medicine. E. Dolgin. Patent-free pact pushes the boundaries of precompetitive research. Nature Medicine 20: 564-565 (2014). http://www.nature.com/nm/journal/v20/n6/full/nm0614-564.html

The VET Framework. PACEOMICS Ali-Khan, PACEOMICS Bubela and PACEOMICS McCabe writing for PACEOMICS. July 2014. http://paceomics.org/wp-content/uploads/2014/10/Policy-Brief-3-The-VET-Framework2.pdf

Caution urged as doctors push ahead with DNA-tailored treatments. PACEOMICS Bubela on ABC News. Jul 2014. http://www.abc.net.au/news/2014-07-12/caution-urged-over-dna-tailored-treatments/5592252

Knowledge and Technology Exchange & Exploitation. PACEOMICS McCabe presents at the BioCanRx NCE meeting, Ottawa, ON. Jul 2014.

Privacy Commissioner Calls Upon Insurance Industry to Refrain from Asking for Genetic Test Results…For Now. PACEOMICS Toews blogs at Genome Alberta. Jul 2014. http://genomealberta.ca/blogs/privacy-commissioner-calls-upon-insurance-industry-to-refrain-from-asking-for-genetic-test-results-for-now.aspx

Examining public policy implications of gene patenting post Myriad v. AMP. PACEOMICS Ali-Khan and PACEOMICS Gold writing for PACEOMICS. March 2014. http://paceomics.org/wp-content/uploads/2014/10/Policy-Brief-1-Examining-Public-Policy-Implications-of-Gene-Patenting2.pdf

Analyzing policy impacts on biotechnology innovation using patent data. PACEOMICS Ali-Khan and PACEOMICS Gold writing for PACEOMICS. March 2014. http://paceomics.org/wp-content/uploads/2014/10/Policy-Brief-2-Analyzing-Policy-Impacts-on-Biotechnology-Innovation-Using-Patent-Data1.pdf

Consider the Consequences: The ethics of emerging health technologies. PACEOMICS Castle hosts a Café Scientifique. Victoria, BC. May 2014.

Missed opportunities: media, celebrities and BRCA1 screening. PACEOMICS Caulfield‘s research highlighed in Signals (Blog). Mar 2014. http://www.signalsblog.ca/missed-opportunities-media-celebrities-and-brca1-screening/?author=32

Analyzing policy impacts on biotechnology innovation using patent data. PACEOMICS collaborates with the Duke Sanford School of Public Policy to host workshop on Capitol Hill, in Washington DC to examine the impacts of the US Supreme Court ruling in AMP v. Myriad Genetics. Event launched by a Congressional Briefing hosted by Congress Woman and National Democratic Committee Chair Debbie Wasserman Schultz. PACEOMICS Bubela, Gold and Castle present and/or chair workshop panels. Mar 2014.

Hope and hype in stem cell research. Let’s Talk Science / Stem Cell Talks. MaRS Innovation Centre, Toronto, ON. PACEOMICS Bubela is invited keynote speaker and panel moderator. Mar 2014.

2013

Celebrities, Genetics and Tough Decisions: the Angelina Effect. PACEOMICS Caulfield’s research highlighted in podcast from the American Society of Human Genetics Annual Meeting. Dec 2013. http://www.nature.com/gim/podcast/index.html

Angelina Jolie’s preventative double mastectomy & 23andMe. Edmonton Journal. PACEOMICS Caulfield’s research highlighted in Daily Kos. Dec 2013. http://www.dailykos.com/story/2013 /12/20/1264262/-Angelina-Jolie-s-preventive-double-mastectomy-23andMe#

Angelina Jolie’s celebrity outshines breast cancer risks: study. PACEOMICS Caulfield’s research highlighted in University of Alberta news. Dec 2013. http://news.ualberta.ca/newsarticles/2013/december/angelina-jolies-celebrity-outshines-breast-cancer-risks

How The Public And The Media Got Angelina Jolie’s breast cancer message wrong. PACEOMICS Caulfield’s research highlighted in Forbes Magazine. Dec 2013. http://www.forbes.com/sites/davidkroll/2013/12/24/whos-really-responsible-for-angelina-jolies-failure-as-a-breast-cancer-educator/

Rarity of Jolie’s condition under-reported, U of A researcher says. PACEOMICS Caulfield’s research highlighted in Edmonton journal. Dec 2013. http://www.edmontonjournal.com/health/rarity+angelina+jolie+condition+under+reported/9331492/story.html

The Biggest Public Health Stories of 2013. PACEOMICS Caulfield’s research highlighted by Gateway Gazette. Dec 2013. http://gatewaygazette.ca/angelina-jolies-celebrity-outshines-breast-cancer-risks-study/

What Does It Mean to Claim that Personalized Genomic Medicine is “Empowering” and “Precise”? As part of PACEOMICS Caulfield’s team seminar series, Dr. Eric Juengst delivers the 2013 Picard Lecture. Nov 2013. http://www.hli.ualberta.ca/Events/2013/November/2013-11.14_Picard_Lecture_2013.aspx

EMBO Science Policy reporter Sandra Bendiscioli interviews PACEOMICS Caulfield about some of the limitations of Personalized Medicine. Nov 2013. http://www.youtube.com/watch?v=bjzcFRnFY3k

Receptor Capacity for Biotechnology Innovation in Canada. PACEOMICS Bubela is panelist and draft report co-author at Genome Canada workshop. Ontario. Sept 2013.

Government briefing on PACEOMICS. McCabe and Menon meet with Minister of Health, the Honourable Rona Ambrose. Sept 2013.

CETA best fix for Canada’s ‘bad reputation’ with IP protection, say experts. PACEOMICS Gold quoted in The Hill Times Online. Sept 2013. http://www.hilltimes.com/policy-briefing/2013/09/09/ceta-best-fix-for-canada%E2%80%99s-%E2%80%98bad-reputation%E2%80%99-with-ip-protection-say/35857

Biotech lobby optimistic on intellectual property reforms
 BIOTECanada sides with research-based pharma on CETA negotiations, but experts warn that tougher protections could hurt Canadian researchers. PACEOMICS Gold quoted in The Hill Times Online. Sept 2013. http://www.hilltimes.com/policy-briefing/2013/09/09/biotech-lobby-optimistic-on-intellectual-property-reforms%E2%80%A8/35856

Eli Lilly files for NAFTA arbitration in $500M drug patent dispute with Ottawa. PACEOMICS Gold quoted on Yahoo! Finance Canada. Sept 2013. http://ca.finance.yahoo.com/news/eli-lilly-files-nafta-arbitration-500m-drug-patent-180501596.html

Eli Lilly Moves Forward With NAFTA Challenge In Canadian Patent Dispute. PACEOMICS Gold quoted in World Trade Online. Sept 2013. http://insidetrade.com/index.php?option=com_user&view=login&return=aHR0cDovL2luc2lkZXRyYWRlLmNvbS9JbnNpZGUtVVMtVHJhZGUvSW5zaWRlLVUuUy4tVHJhZGUtMDkvMTMvMjAxMy9lbGktbGlsbHktbW92ZXMtZm9yd2FyZC13aXRoLW5hZnRhLWNoYWxsZW5nZS1pbi1jYW5hZGlhbi1wYXRlbnQtZGlzcHV0ZS9tZW51LWlkLTE3Mi5odG1s

Eli Lilly Files $500M Pharma Patent Case Against Canada. PACEOMICS Gold quoted in Corporate Counsel Magazine. Sept 2013. http://www.law.com/corporatecounsel/PubArticleCC.jsp?id=1202619453633&Eli_Lilly_Files_500M_Pharma_Patent_Case_Against_Canada#ixzz2gg8JJHFn

Ottawa, We have a problem. PACEOMICS Gold quoted in Corporate Counsel Magazine. Aug 2013. http://www.law.com/corporatecounsel/PubArticleCC.jsp?id=1202610546957&Ottawa_We_Have_a_Problem#ixzz2gg69Fe9y

Consultation with Jonathan Gitlin, Science Policy Analyst, Policy & Program Analysis Branch, National Human Genome Research Institute, National Institutes of Health on broader impacts for NIH funded research of SCOTUS decision in AMP v. Myriad. Baltimore, MD. Jul 2013.

Lilly ramps up NAFTA fight over loss of patents. The Globe and Mail quotes PACEOMICS Gold. Jul 2013. http://www.theglobeandmail.com/report-on-business/international-business/us-business/lilly-ramps-up-nafta-fight-over-loss-of-patents/article13223813/

SickKids Hospital dragged into U.S. breast cancer gene suit: How a publicly-funded Canadian hospital ended up in the middle of a U.S. fight to reduce access to a potentially life-saving genetic test. CBC news quotes PACEOMICS Gold. Jul 2013. http://www.cbc.ca/news/health/sickkids-hospital-dragged-into-u-s-breast-cancer-gene-suit-1.1338880

Breast cancer gene patents: the Canadian story New court case raises questions about public-private collaborations. CBC news quotes PACEOMICS Gold. Jul 2013. http://www.cbc.ca/news/health/breast-cancer-gene-patents-the-canadian-story-1.1338883

SickKids & costly breast cancer gene test patent. CBC radio features PACEOMICS Gold. Jul 2013. http://www.cbc.ca/player/News/Health/Audio/ID/2397431534/

Genetic test patent fight. CBC news’ The National interviews PACEOMICS Gold. Jul 2013. http://www.cbc.ca/player/News/ID/2397524123/

Myriad sues over BRCA1/BRCA2 gene patents. PACEOMICS Gold quoted in Canadian Bar Association publication, The National Magazine. Jul 2013.

Analysis of Personalized Medicine and Diagnostics (Dgx) sectors. Methods and case study development. PACEOMICS Bubela collaboration with Profs. Michael Hopkins and Paul Nightingale of Science and Technology Policy Research Unit (SPRU), University of Sussex, UK. Jun 2013.

Canadian Society of Pharmaceutical Sciences (CSPS) Special workshop – Health Economics and the Best of Care. PACEOMICS McCabe is panelist. University of British Columbia, Vancouver, BC.  Jun 2013.

Genetic Testing and You! PACEOMICS Bubela is at CIHR Café Scientifique. Edmonton. May 2013.

Can you know too much about your genes? Jolie has turned a spotlight on testing, but it may have risks. National Post. PACEOMICS Caulfield quoted. May 2013. http://news.nationalpst.com/2013/05/17/can-you-know-too-much-about-your-genes-jolie-has-turned-a-spotlight-on-genome-testing-but-it-comes-with-risks

PACEOMICS GOLD meets with Ontario Genetics Secretariat on the need for a test case to address legislation around the patenting of genetic material in Canada. May 2013.

Development of a framework for the assessment of companion diagnostic technologies for personalized medicines. PACEOMICS Menon collaboration with Health Technologies & Services Policy, Alberta Health. May 2013.

Proposed federal legislation regarding the licensing of therapies for rare diseases. PACEOMICS Menon hosts consultation with Health Canada and Canadian Organization for Rare Disorders on new proposed legislation. May 2013.

Commercialization and Translational Challenges for Whole Genome Sequencing: Exploring the unique social/ethical and health system challenges of low cost whole genome sequencing. PACEOMICS Bubela presenting at the Canadian Institutes of Health Research Institute of Genetics. Montreal, QC. Apr 2013.

Genetic Testing and You! PACEOMICS Bubela is at CIHR Café Scientifique. Montreal. Apr 2013.

Science, speculation and the spectre of genetics: UAlberta professor champions hard evidence over fear-based hype on genetic technology. PACEOMICS Caulfield featured by U of Alberta news. Apr 2013. http://news.ualberta.ca/newsarticles/2013/april/science-speculation-and-the-spectre-of-genetics

PACEOMICS McCabe collaboration on potential case study technologies. With Prof. James Shapiro, University of Alberta. Apr 2013.

PACEOMICS McCabe collaboration on designing health service implementation of Personalized Medicine. With Prof. Michael Mengel, University of Alberta and Albert Health. Apr 2013.

PACEOMICS McCabe collaboration on UK NHS Funded Diagnostics Evaluation Co-operative. Providing case study technologies for the Program. With Prof. Michael Messenger, University of Leeds/Leeds University Teaching Hospital. Apr 2013.

Proposed new federal legislation regarding the licensing of therapies for rare diseases. PACEOMICS Menon hosted a consultation with Health Canada and the Canadian Organization for Rare Disorders on proposed new federal legislation regarding the licensing of therapies for rare disorders. Mar 2013. 

Re-examining the Promise and Perils of Personalized Medicine: Patents and Beyond. PACEOMICS Caulfield giving the keynote address at Genes & Diagnostics: A Myriad of Issues. Cold Spring Harbor Laboratory. Mar 2013.

The Genetic ‘Revolution’ and Personalized Healthcare: Why We Shouldn’t Hold Our Breadth. PACEOMICS Caulfield speaking at the McMaster University Health Forum. Jan 2013.